"And we know that all things work together for good to those who love God,to those who are the called according to His purpose."...
That's the verse that comes to me today..
Matts doctor appointment went great this morning (as we expected it would) The doctor said everything looks great and Matt can do all the things he did before surgery..including playing ball(those of you who know my husband know how happy that made him:)) He does have to be careful when he pulls things with his hands above his head,but other then that,he is back to good!That was such good news for us and he was very happy!
Haydens doctor appointment didn't go as well:( The minute I told doctor Lacroix about the spot on her first scar she got a look on her face.. and as soon as she looked at it she said "we need to keep her on the meds" ..I guess in a small way I was kinda prepared for that..she has stressed to me again and again how aggressive this type of infection is and how we cant take her off of it until we are CERTAIN its gone.. She didn't feel anymore lumps,and that was the first time she hasn't,so that was good...but because of what that scab was doing she said she just don't feel comfortable taking her off of it yet...she wants her to be on treatment for another 2 months and then we will go back,do labs again and hopefully then she can come off.Until then im sapose to call her if I see any little bit of change that area.
This wasn't the news we were hopeing for..I was really excited to start the year with ALL of this behind us for the most part...but its ok..id rather have her stay on the meds a little while longer,then have her come off and it flare up again.So I feel at peace about it..not that I didn't shead a tear or two:) Im glad that part of today is over with,i had allot of headaches the past week and I think its just because of thinking about what the doctor would think and say...God is still working on me in that area...to not take this on myself.Im definitely not perfect in that area.
Another thing im having to deal with allot..as we feel it getting closer and closer to the end of all this for Hayden,i find myself worrying about it coming back..tha was something the doctor said is not uncommon at all...a part of me wishes I didn't know that cause I think of that often..but there again I know that's an area God is telling me to lay down and trust Him...I hate that that is so hard for me to do sometimes..But I must.Its what Hes called me to do...
Thank you all for praying for us !! Please keep praying!
Merry Christmas to all!!!
Monday, December 15, 2014
Sunday, December 14, 2014
lets get back to normal...
This week has felt more "normal" then it has in a long time. Matt has not been officially cleared to work yet,but he has been working and put in an almost full week this week.Hes being careful:) and isn't over doing it,but tomorrow he goes in to the doctor to hopefully get the official "Ok" and also find out if/how careful he needs to be . I forgot how much I enjoy my days at home with just the kids..not that having him around was terrible...but this week has just been joyful:)
Tomorrow holds allot for us..Matt meets with his doctor and Hayden also meets with the infectious disease doctor , last time we were there she thought hopefully the next time we come we could take her off antibiotics. Im so eager for this.. but also feeling a bit anxious.Im glad she has an appointment tomorrow,the scar from the first surgery started showing a bit of a pussy looking spot, where the drain would have been, about 2 weeks ago,a few nights ago as I was drying her off after her bath,the pussy part came off and now theres a scab there. I don't think its anything to worry about but I just want to talk to the doctor about it since its the first "change" weve seen on her neck since her last surgery.
(the dot on the scar below her ear is where the scab is now.)
Prayers for that would be so much appreciated..Shes very much herself and talks a mile a minute these days.:)Im not doing so well at remembering her medicine morning and evening,but she does pretty well at bedtime reminding me "I need my mecine" when I forget:)
A couple weeks ago I went through all my pictures and put a file for all of Haydens doctor visit pictures,hospital pictures and wound pictures,and planned to do a scrapbook of it all...but everytime I go to start it I just tear up..the memories are to fresh,to raw and im just not ready to "re-live" all that again..its weird how something like this feels so much like a wound to me, a wound I don't want to think much about.It brings to many tears,to many sad feelings..so for now..those pictures will sit there,and maybe once we get the final "infections gone" news,maybe then I can start the book:)
We are looking soo forward to spending Christmas in florida with my parents,matts parents,my grandma,matts grandpa and my oldest sisters family. This was the first year we weren't able to go have our family Christmas in Pa with my family,which was so so hard,but ok at the same time since I knew we'd be with some of them in florida.
God has been so good to us...this year has just been so tough,tougher then anything weve gone through..But never once were we alone.Not only did we feel His presence in our midst..He also used our families ,friends and even complete strangers to be His hands and feet.And it was so clear to us that even the generous ,kind and thoughtful things others did for us,was actually Him reminding us that He hasn't left our side...We cant say thanks enough to everyone whose walked this journey with us,who kept us on our feet while Matt wasn't working.Weve talked about how much we have learned through all this.What others have done for us so much as to how we can help others as well. "do unto others as you would have them do unto you" brings a whole new meaning to us...to help those in need,to actually DO things and not just offer,and that even things that may seem small,bringing a bag of coffee, spending the day at our house making food and laughing, buying bandaids for surgery scars and so many more,bring a tremendous amount of joy just as much as anything else would.
I will post again, hopefully soon, after the doctor visits tomorrow ,but with Christmas just around the corner our schedule is CRAZY ...so you never know when ill get it done,this post ive been working on for 4 days:) Thanks for reading! And if you think about us tomorrow please pray!
Tomorrow holds allot for us..Matt meets with his doctor and Hayden also meets with the infectious disease doctor , last time we were there she thought hopefully the next time we come we could take her off antibiotics. Im so eager for this.. but also feeling a bit anxious.Im glad she has an appointment tomorrow,the scar from the first surgery started showing a bit of a pussy looking spot, where the drain would have been, about 2 weeks ago,a few nights ago as I was drying her off after her bath,the pussy part came off and now theres a scab there. I don't think its anything to worry about but I just want to talk to the doctor about it since its the first "change" weve seen on her neck since her last surgery.
Prayers for that would be so much appreciated..Shes very much herself and talks a mile a minute these days.:)Im not doing so well at remembering her medicine morning and evening,but she does pretty well at bedtime reminding me "I need my mecine" when I forget:)
A couple weeks ago I went through all my pictures and put a file for all of Haydens doctor visit pictures,hospital pictures and wound pictures,and planned to do a scrapbook of it all...but everytime I go to start it I just tear up..the memories are to fresh,to raw and im just not ready to "re-live" all that again..its weird how something like this feels so much like a wound to me, a wound I don't want to think much about.It brings to many tears,to many sad feelings..so for now..those pictures will sit there,and maybe once we get the final "infections gone" news,maybe then I can start the book:)
We are looking soo forward to spending Christmas in florida with my parents,matts parents,my grandma,matts grandpa and my oldest sisters family. This was the first year we weren't able to go have our family Christmas in Pa with my family,which was so so hard,but ok at the same time since I knew we'd be with some of them in florida.
God has been so good to us...this year has just been so tough,tougher then anything weve gone through..But never once were we alone.Not only did we feel His presence in our midst..He also used our families ,friends and even complete strangers to be His hands and feet.And it was so clear to us that even the generous ,kind and thoughtful things others did for us,was actually Him reminding us that He hasn't left our side...We cant say thanks enough to everyone whose walked this journey with us,who kept us on our feet while Matt wasn't working.Weve talked about how much we have learned through all this.What others have done for us so much as to how we can help others as well. "do unto others as you would have them do unto you" brings a whole new meaning to us...to help those in need,to actually DO things and not just offer,and that even things that may seem small,bringing a bag of coffee, spending the day at our house making food and laughing, buying bandaids for surgery scars and so many more,bring a tremendous amount of joy just as much as anything else would.
I will post again, hopefully soon, after the doctor visits tomorrow ,but with Christmas just around the corner our schedule is CRAZY ...so you never know when ill get it done,this post ive been working on for 4 days:) Thanks for reading! And if you think about us tomorrow please pray!
(Just cause it was to precious not to post)
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