Thursday, September 25, 2014

somewhere in the midst of this storm...

Its been far to long since I updated my blog!so bare with me if this post is another one of those lengthy ones:)
Last week was a very rough week for me.When Hayden starts showing side effects of the meds shes on, I get stressed. And that's what happened ...i didn't want to call the doctor right away cause i wanted to see if we could make it..well after about a week straight of her being so tired,looking so sick,and being a total and complete grump,i called the doctor,they switched her to ethambutol. Being on this antibiotic means that Hayden will have to start seeing an eye doctor simply because this med can mess with your vision.I asked the dr allot of questions about this ...things like "what are the long term risks?If it would do something to her eyes would it go away when she goes off of it?" She said so far they have not seen long term effects,since they have always caught it as soon as it started to mess with your vision(hence the seeing an eye doctor regularly)I really didn't want to put her on this stuff,cause i didn't want to have one more doctor to see,have a whole new set of bills and im a little worried about how they are going to check her eyes.But she is now on it and after 4 days of going off the other stuff i started seeing a huge difference in her.PTL! Shes back  to her happy self,shes still tired allot,but not as much as she was and  other then being a little skinny(shes petite the way it is,but the meds have taken her appetite away a lot)she looks healthy.After consulting her doctor i started Hayden on a pro biotic my sister gave me to try called plexus.I also started taking it and have noticed a difference in myself,my appetite and just over all how i feel..Im praying that it helps Hayden as well.
The past year i have been struggleing with my skin.I never had any problems with it before but over Christmas i started breaking out in a rash on my arm, the dr said it was an allergic reaction to something ,put  me on sterroids and a few weeks later in went away,it comes and goes now,and i do have to be careful what kind of soaps i use,but im noticing a patern...it seems to get really bad when i get stressed..and last week it was really bad.I have been soo busy the past couple weeks and it wont be slowing down for another couple weeks...last week i just couldn't seem to get  time to sit down and have my Jesus time.The more i didn't get my Jesus time,the  more stressed i became.finally one day,between the business i was driving to the store,i turned off my music and i just prayed...i named everything that was stressing me and just said "Jesus i give this to you,im not taking it anymore." My prayer was short,it was not a long ,worded prayer.It was simple.2 days later i seen my rash get noticeably smaller and today its almost completely gone. As i looked at my arm the other day and just said thank you God,it came to me...God doesn't need an all out prayer,it dont have to be a 30 minute thing, and sometimes all i need to say is "Jesus" and he knows....and he starts to work,cause that's my surrender,that "Jesus" is me surrendering,and that's when He steps in and takes over. Thank you Jesus!!!Because of this,my song all week has been "Multiplied" by need to breathe,although ive been listening to daves highway sing it(do yourself a favor and listen to these kids sing this song...so moving!)It says in the song ""God of mercy,sweet love of mine,I have SURRENDERED to your design,May this offering stretch across the sky.These hallelujahs be multiplied"
The meaning of the title of this post "somewhere in the midst of this storm"  is cause that's just how i feel right now...like were in the midst of it somewhere....i have cried to a few people over the past couple weeks of how long this all has been going on and how long we have to go yet...but God is giving grace and continues to remind me "one day at a time"and on the days i feel i cant catch my breath...He carries me.
I have had so many people ask over the past couple weeks,"how is it having your husband home all the time?" :)That's  a good question. My answer  is , he is not driving me crazy:)On sunday the kids and i stayed home from church with our dog(her hip popped out of place last week so she had her one leg bandaged up to her belly,making it almost impossible for her to walk let alone go potty..it was interesting!)anyways,Matt went alone and after he left i took a deep breath and was reminded how nice it is to have the house to ourselves..i told him this later and said please dont take offence by this,nothing against you at all!But that was just so good for me!
I do feel that we have to be so much more intentional about our love,our marriage.I say intentional meaning,its so easy for me to just go about my day,doing my thing,with him just here. At first it wasn't like this,but now,i have to remind myself to show love,to feel loved. This month was both our anniversary and Matts birthday,and with all this in mind we made an appoint to go out just us for both of those.And both times it was just so good to connect like that again,outside of the house,away from the kids,and just go on a date.
We are being taken care of...i cannot even tell you how amazing it has been seeing the people who have given to us,people that we haven't seen for years,but God laid it on their hearts...today as i was reading a letter someone sent i just started sobbing as they said "You have been on our hearts and minds continually and lift you up as often as he Lord brings you to mind..."and then said "we wanted to encourage you and let you know how many people are praying for you."i took the letter to Matt ,with tears in my eyes.My Jesus knows just what i need!! We cannot say thank you enough..really!!I told Matt today,i started thinkin about what we would do ,if our church,family and friends weren't helping us out while Matts off work,really,what would we do?It made me panicky to think that there are people in that situation.And again it made me oh so very gratefull.We also got  letter from a couple who have been in our situation as far as having the man of the home injured and out of work for a few months,they sent some money and for some reason,that just blessed me and got me excited,not to think that someday someone else will be in Matts shoes,but to think that we will get our chance to give as well...and i have a whole new look at giving!
Hayden turned 2 on September 18th,We had her party sunday night and it was a blast.We had quite a few people there,since i dont have my family here i usually like to invite some people to fill in for my side:)this year those people were,our neighbors,who my kids absolutely adore,my closest friend and her family,and Matts cousins family.Hayden had so much fun and was so pleased with all her present and her nemo cake which shes been asking for for weeks now:)




The next couple of weeks are so crazy for us,tomorow we leave for church camping.I am soo excited about this,i love church camping and cant wait to go again after 2 years of not going. We come home from that on sunday, and on Tues. we are leaving for florida for a week.Our pastors son Landon is getting married on sat down there ,hes likea  brother to me,and the kids are both in the wedding and i am co-ordinating it.My parents moved to florida 2 weeks ago,so were excited we get to stay with them for a whole week:)Tuesday Hayden also has her first dr appointment with the eye doctor and then from there shes going to see dr lacroix(infectious disease dr.) so we decided we'll pack up our bags Tuesday morning,go to Greenville to Haydens appointments and then drive straight to florida,oh did i menion before we leave for Haydens appointments Matt has therapy?!We sure could use some extra prayers that day:) We get home from florida (on tues or wed.)and then that weekend is our womens conference at our church which i am helping on the worship team and drama team,and i think my  sister in law will be here that weekend as well(hopefully she can keep me sane!:))A few days after womens conference we are taking care of our nieces for a little over a week while Matts sister and her husband go to Israel. Throw in a few doctor appointments,meetings,therapy and runs t the pharmacy and you got B-U-S-Y:)

I hope to be able to post again sometime next week after Haydens appointments but with all this business i dont know if i will get to..
We so appreciate you love support and prayers!

Sunday, September 14, 2014

Lead me to the Rock

Whats on my mind....
Health.
Complete health.
I ,in no way,want to take for granted the health we do have,even Hayden.There are far worse sicknesses then hers.
Sick...my daughter is just that.She has an infection.Shes sick.She has been sick since march .6 months.Maybe that's why today I have felt weak.Maybe that's why ive felt on the verge of tears,overwhelmed and just...done.The past week ive told my husband numerous times...im so done with this! When will it end?  When will things be normal. Hopefully by November Matt will be back at work,but Hayden...Hayden will still be doing treatment.I know im sounding negative.Again,im so thankful its not worse,im thankful her treatment is not chemo,im thankful we do know she is getting better,im thankfull I still have my daughter.
But today,has been one of my hard days.
Those have come,they will come again.
There are days I think "if only it was a year from now...When Hayden will be done with  treatment,i wont always wonder,maybe shes doing this cause of her meds..."but then I think..a year?a year from now my kids will be ,well a year older.Im not ready for them to grow up...I have to enjoy every moment NOW.But its hard to do that when my little girl an hour and half after taking her meds comes running to me crying,holding her head and saying "it hurt it hurt" and when I ask her what hurts she says,"my head ,my ears ,IT HURT!"As she holds her head with both hands.
As I tucked her into bed tonight I simply prayed,"Lord give me wisdom!!!Give me discernment!"
Im crying as I write this.
I just don't know when to be concerned,what means what...
I know if I call my doctor tomorrow and tell her this and that Haydens eyes have been looking really glossy and sick like again,shes going to take her off this med,put her on the other one,which means anoter doctor,more doctor visits...more bills.

Haydens birthday is on Thursday...I keep thinking about that...birthdays are celebrations...celebrating her life. A part of me wants to wait...wait to have a party for her,wait to celebrate..until we  can celebrate this infection being gone...Ive been less excited about this birthday then I have with any of the others...for that reason .i want to celebrate...I want to celebrate her being taken off of her meds I want to celebrate hearing the doctor say "the infection is gone" I want to celebrate seeing her healthy!!but this is her BIRTHDAY.2 years ago she came into this world,The Lord gave her to us and she has lit up our lives ever since. She is one of the greatest blessings we have been given.Maybe that's just what she needs...a little celebration.Maybe that's what I need.

Im writing all this...not to complain...but to simply ask you to pray with me,for wisdom,for strength,and for peace..once again.


All day this verse has been going through my mind...
"When my heart is overwhelmed,lead me to the rock that is higher then I."

Thursday, September 11, 2014

Satisfied

I have to write...my fingers want to type yet I don't even know what to say...Ill start by  saying..Hayden is doing well...we don't see any doctors again until end of this month and I don't really know much until then..she is once again on 2 meds and seems to be doing well with them..her appetite has decreased allot but other then that I haven't noticed to uch(shes been on the rifibutin for 2 days now.)Her joyful-ness these days has been..well refreshing.And theres somedays I look at her and think "shes going through so much,yet she makes us laugh so much,and she is the apple of her brothers eye..." shes tiny,but she is amazing to me.
Now let me get to what is going on outside of Haydens case...

Oh Jesus,write this post for me...
Last evening we had church re-organization..baisically ,we got new sunday school teachers etc. They have been saying over and over,"if you feel called ,volunteer,dont wait till someone asks.."well don't ya know...ive been feeling called...and ive been praying about it ALOT.so when they asked for junior girls ages 11-13 sunday school teacher..my heart started pounding, (((Light)))i looked at Matt who was smiling(he knew) and confirmed "you just told me you felt called to this" I yelled out"ill do it" Imediately,thoughts races through my mind(((Darkness))) "your crazy,why are you taking this on? you have too much already!its ganna stress you out!"

                          "Do not doubt in the darkness what you learned in the light"
I know this is something God has been calling me to...for a long time...He has been /is and will equipt me for this.
 "Are you going to trust me?" those words I have heard over and over lately.
Everything seems like a battle right now...I feel like there is a battle for my soul. Jesus wins everytime, but the devil don't stop fighting.
We got home last night and Asher went to let the dog out of the laundrey room and said "um mom,how am I saposed to get out there??" I looked out and our cabnet which was full of glass canned goods had fallen completely off the wall..too much weight I guess..I screamed "NNOOOOOO!!!!!!!!!!"



Matt came out and we just stood there,shocked.This was around 10 pm. I wasn't going to ask anyone to come help at that time of night.. so I started cleaning up..Matt kept asking what he can do,but really he couldn't do anything especially with his arm in a sling...I called Matts mom who was sad with me and then said" im going to pray that there will be more jars saved then you think now" as I started cleaning up I was shocked,what looks like total disaster,turned out to be not so bad as far as saved jars...around 1030 I needed to move the cabnit to get to the rest of it,but I couldn't,it was stuck (I was then reminded how badly I need the gym:)) so I text my neighbor ( our neighbors deserve some kind of an award!!)who I had just heard drive in the lane and he came up  and helped me move it out to the garage..by 12 pm I had everything cleaned up .All the jars etc that was out there was sitting on my freezer ,washer and dryer.12:30 I crawled in bed. Feeling grateful as I thought of how bad it could have been had one of the kids been out there or even out little puppy!And grateful for my mother in laws answered prayer that there were more saved jars then I thought there would be.
Mom in law brought us breakfast this morning.But all morning I just felt ...I don't know.Overwhelmed,heavy.I was running around in circles from the time I got up until the kids took naps..wash,dishes,bills,diapers,lunch,dishes again,more wash...somewhere through out all that,my closet door broke off...
 
At this point I felt like it was just test after test...like Job. Then those words again "are you going to trust me?"
Finaly I went back to my bed and just layed there ,I put my phone down and just started praying my arms out ,palms up "Jesus,pour your grace into me,pour your peace into me,pour your love..holy spirit come." such a powerful moment.I pictured Him,over me,pouring into me.Kissing my face.I got up feeling refreshed. And I kept going.A friend text me and said shes bringing me coffee(great news since I was about out!) and right after that Matt told me that we had received some money on our pay pal account.When he told me how much,i cried. I called my mom and told her and between tears she said"i knew this morning was going to be rough for you and I prayed someone would do something for you today." I bawled.i just love my mom!! My friend came with coffee and we sat on the porch for an hour or 2 just talking...EXACTLY what I needed. We cried as we talked about our parents and how special they are. We laughed at the faces her little boy was making, And we beamed as we talked about our kids and how they fill us with joy.It was so good. and now that I think about it...peace and encouragement was being  poured into me while she was here.
 I have seen God, use his people, over and over again over the past couple of months ,to be his hands and feet.Its such a beautiful thing.
Tonight we had supper and after we were done Matt said,"lets go to the park with the kids bikes and get some excersize"we left the dishes and went.After that we decided to go watch Matts nephew and some friends rom churches kids practice football.Around 7 we headed home and our neighbors stopped in a bit. After they left I bathed the kids took a shower and went to let the dog out,i opened the laundrey room door to find my dog on the top step shaking,and about 2 inches of water all over the floor and it was still coming! I called for Matt who ran out to find out hot water heater had rusted out the bottom some how..
He couldn't get the water to stop coming out so we went out by the road,had to dig around till he finally found the lever to turn off all the water. Meanwhile I called Matts dad,cause I knew Matt was going to do something he shouldn't but I didn't have a clue what to do.Matt and I looked at each other,kinda laughed and stood there and just hugged each other as I said "you know I feel like these are just tests,God keeps asking "are you going to trust me" I really didn't know what to pray,but I just said "Jesus Jesus Jesus"
__________________________________________________
The spiritual warfare that goes on,is one we don't see ,sometimes we don't feel,but it is constant.We make choices,and I have chosen to trust God,but I feel like satan is constantly trying to make me "pay" for that.I am understanding the sovereignty of God more then I ever have.He is bigger then ALL of this..Darkness is all around. Can I be a light in the midst of it??!I have nothing but to trust God.And I think that's exactly where He wants me right now.I do not enjoy ,nor like ,what we are walking through.But its where He has placed us right now.It could be so uch worseAnd I have learned so much about my savior over the past couple months .He has stretched me,and nothing but good has come from that. We have had bad days,We have had rough moments,but thank Jesus ,they are not constant.He has given us laughter,He has given us fun,most importantly,He has given us each other.And oh how I love my little family.
"Let your song be the song I sing through the blessing and burdens this life will bring in you alone im satisfied."

Saturday, September 6, 2014

Promises...

Today is Saturday...normally Saturdays,i like to relax,not do much around the house and usually do a little something fun...But these days Saturdays feel like Mondays,or Tuesdays,or Wednesdays.So I have to remind myself "todays Saturday." So today the kids and I went grocery shopping with gramma.Matt started videoing football games for the middle school on saturdays.Its so good for him,to get out of the house,to watch some football and to feel like hes doing something.Its been good for me and the kids to,to feel like its a "normal" day.
We got back from visiting my family in pa on Tuesday and have been going ever since.Wednesday morning Matt had therapy and I had to go get some grocerys.I was so extremely grateful that some sweet friends came and cleaned my house while we were gone and when we got home tueday night,our neighbors came up and helped us unload the car.Seriously amazed at how people just rally around us.Thursday morning Matt had a dr appointment,which went good but the doctor did ask Matt to stay in the sling 4 more weeks instead of 2.He was a little bummed about that,as the sling makes him feel so restricted(what its saposed to do I guess)and hes very ready to get out of it,but he is doing what is needed.Thursday Matt rode with his brother in law in the truck and he really enjoyed that as well,any getting out is great for him:).Friday morning Hayden had her dr appointment with the ID doctor and we finally got  bit of good news.She was so happy with how it looked and felt and she says now she only feels 30% chance of another surgery(which was once 99% then went to 50% now 30%)It was so nice to see it all over her face how pleased she was with how the treatment is finally helping!We then discussed Haydens meds.and the stuff she went off of while we were in pa.I know ive said it before but i'll say it again,this doctor is amazing!She is so kind and caring and she listens and really truly wants whats best for Hayden and me! I told her I would be willing to try going back on the stuff that we thought made her grouchy and just see if it does the same thing again.She liked that and said if Hayden has 2 grouchy days in a row,we'll take her off of it and put her on the other stuff...my reason for wanting to try this again is,the other option would mean having to go to yet another doctor to check her eyes regularly for as long as shes on it(still looking like 6 months to a year)I would love to avoid another doctor so were going to see how this goes.We will start her on it again on Monday as long as her lab results from Friday come back clear. Im nervous about this,but feel good about it as well knowing we can take her off of it if it gets to bad.Hayden has been more herself the past couple days then she has in a while,shes happy ,talking more every day and  is just so much fun to be around.I told Matts mom this morning,our kids stages are soo much fun right now and im trying, despite all that is going on, to enjoy it to the fullest.heres a few pictures from our pa trip and since were home..
Asher and his cousin Sky

Hayden got her fill of mimi time


                                                 Me,Hayden and my mom
Asher snuggleing with Matt and my parents house

 
This was her just 2 days after going off her meds..a totally different child.


Everyone asks us "how are you guys doing" when they see us....
Were doing ok.:) we have our good days and we have our bad days.But its amazing how on the bad days,never fails,we get an encouraging text,or someone calls and says there bringing supper or a letter comes in the mail... God promised He would never leave us or forsake us and He continues showing us that through all our friends,family and community of people.Yesterday while driving I seen the neatest thing,im still not sure how to put into words what I seen or what it did for me...It wasn't raining.in fact the sun was shining.The roads weren't wet but I turned the corner and there was a huge bright rainbow, I slowed down and just stared at it till trees started blocking my view,i got past the chunk of trees and I looked all over for the rainbow again but I couldn't find it... Just that morning I had read something about not missing the things God gives us,and immediately I quieted my spirit and heard "don't forget my promises,come rain or shine."
And then I remember this song...
I'm running back to your promises one more time
Lord that's all I can hold on to
I gotta say this has taken me by surprise
But nothing surprises You

Before a heartache can ever touch my life
It has to go through Your hands
And even though I keep asking why
I keep asking why

No matter what, I'm gonna love You
No matter what I'm gonna need You
I know You can find a way to keep me from the pain
But if not, I'll trust you
No matter what, no matter what

When I'm stuck and there's nothing else by myself
I'm just sitting in silence
There's no way I can make it without Your help
I wont even try it

I know You have Your reasons for everything
So I will keep believing
Whatever I might be feeling, God, You are my hope
And You will be my strength,
Anything I don't have You can give it to me
But it's okay if You don't, I'm not here for those things
The touch of Your love is enough on its own
No matter what I still love You and I'm gonna need You