Promises...

Today is Saturday...normally Saturdays,i like to relax,not do much around the house and usually do a little something fun...But these days Saturdays feel like Mondays,or Tuesdays,or Wednesdays.So I have to remind myself "todays Saturday." So today the kids and I went grocery shopping with gramma.Matt started videoing football games for the middle school on saturdays.Its so good for him,to get out of the house,to watch some football and to feel like hes doing something.Its been good for me and the kids to,to feel like its a "normal" day.
We got back from visiting my family in pa on Tuesday and have been going ever since.Wednesday morning Matt had therapy and I had to go get some grocerys.I was so extremely grateful that some sweet friends came and cleaned my house while we were gone and when we got home tueday night,our neighbors came up and helped us unload the car.Seriously amazed at how people just rally around us.Thursday morning Matt had a dr appointment,which went good but the doctor did ask Matt to stay in the sling 4 more weeks instead of 2.He was a little bummed about that,as the sling makes him feel so restricted(what its saposed to do I guess)and hes very ready to get out of it,but he is doing what is needed.Thursday Matt rode with his brother in law in the truck and he really enjoyed that as well,any getting out is great for him:).Friday morning Hayden had her dr appointment with the ID doctor and we finally got  bit of good news.She was so happy with how it looked and felt and she says now she only feels 30% chance of another surgery(which was once 99% then went to 50% now 30%)It was so nice to see it all over her face how pleased she was with how the treatment is finally helping!We then discussed Haydens meds.and the stuff she went off of while we were in pa.I know ive said it before but i'll say it again,this doctor is amazing!She is so kind and caring and she listens and really truly wants whats best for Hayden and me! I told her I would be willing to try going back on the stuff that we thought made her grouchy and just see if it does the same thing again.She liked that and said if Hayden has 2 grouchy days in a row,we'll take her off of it and put her on the other stuff...my reason for wanting to try this again is,the other option would mean having to go to yet another doctor to check her eyes regularly for as long as shes on it(still looking like 6 months to a year)I would love to avoid another doctor so were going to see how this goes.We will start her on it again on Monday as long as her lab results from Friday come back clear. Im nervous about this,but feel good about it as well knowing we can take her off of it if it gets to bad.Hayden has been more herself the past couple days then she has in a while,shes happy ,talking more every day and  is just so much fun to be around.I told Matts mom this morning,our kids stages are soo much fun right now and im trying, despite all that is going on, to enjoy it to the fullest.heres a few pictures from our pa trip and since were home..

Asher and his cousin Sky

Hayden got her fill of mimi time

                                                 Me,Hayden and my mom

Asher snuggleing with Matt and my parents house

 

This was her just 2 days after going off her meds..a totally different child.

Everyone asks us "how are you guys doing" when they see us....
Were doing ok.:) we have our good days and we have our bad days.But its amazing how on the bad days,never fails,we get an encouraging text,or someone calls and says there bringing supper or a letter comes in the mail... God promised He would never leave us or forsake us and He continues showing us that through all our friends,family and community of people.Yesterday while driving I seen the neatest thing,im still not sure how to put into words what I seen or what it did for me...It wasn't raining.in fact the sun was shining.The roads weren't wet but I turned the corner and there was a huge bright rainbow, I slowed down and just stared at it till trees started blocking my view,i got past the chunk of trees and I looked all over for the rainbow again but I couldn't find it... Just that morning I had read something about not missing the things God gives us,and immediately I quieted my spirit and heard "don't forget my promises,come rain or shine."
And then I remember this song...

     

I'm running back to your promises one more time
Lord that's all I can hold on to
I gotta say this has taken me by surprise
But nothing surprises You

Before a heartache can ever touch my life
It has to go through Your hands
And even though I keep asking why
I keep asking why

No matter what, I'm gonna love You
No matter what I'm gonna need You
I know You can find a way to keep me from the pain
But if not, I'll trust you
No matter what, no matter what

When I'm stuck and there's nothing else by myself
I'm just sitting in silence
There's no way I can make it without Your help
I wont even try it

I know You have Your reasons for everything
So I will keep believing
Whatever I might be feeling, God, You are my hope
And You will be my strength,
Anything I don't have You can give it to me
But it's okay if You don't, I'm not here for those things
The touch of Your love is enough on its own
No matter what I still love You and I'm gonna need You